Cowden Syndrome: A Guide for patients and their families
Sarah Burton, UI Health Care
Joy Larsen Haidle, M.S., C.G.C., UI Health Care
Heather Hampel, M.S., C.G.C., Ohio State University
Charis Eng, M.D., Ph.D., Ohio State University
Peer Review Status: Internally reviewed by the
authors
First Published:
Last Revised: April 2002
Introduction
This booklet supplements information provided by physicians, nurses,
genetic counselors, and other members of your health care team about
Cowden syndrome. It does not replace regular medical care or
discussions with your physician and health care team. If you see a an
unfamiliar term, please consult the Glossary at the end of this
booklet.
- That's Not the Name My Doctor Gave Me
- What is Cowden Syndrome?
- Common Characteristics of Cowden Syndrome
- How is Cowden Syndrome Diagnosed?
- What Causes Cowden Syndrome?
- How is Cowden Syndrome Inherited?
- Are Tests for Cowden Syndrome Available?
- Cancer Risks Associated with Cowden Syndrome
- What Should I Be Doing About This Condition?
- Check Yourself. Are You Getting the Screening You Need?
- Support Groups and Resources
- Glossary of Terms
- References and Credits